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Defiant

By Janine Shepherd

I have spent most of my life trying to hide the extent of my disability. By sharing my story in Defiant, at long last, it feels like I have ‘come out’ as a spinal patient and it is liberating. I now embrace the word ‘disability’ with pride as I consider how far I have come and what I have achieved since my accident.

I spent almost six months in the spinal ward after a near fatal accident in 1986 left me with life-threatening injuries, including multiple fractures to my neck and back. I still remember the day my father drove me out of the hospital gates, my wheelchair in the back of the car, my emaciated body wrapped in a full plaster body cast to protect my newly repaired back. Life as I knew it would never be the same. In many ways I was fortunate, and in other ways, not so.

Although I was initially told that it was unlikely I would walk again, or have children, or do the things I had done before in my days as an elite athlete, I was determined to defy the grim prognosis. I would eventually go on to learn to walk again, albeit with a limping gait that would lead to many other complications.

My remarkable recovery from wheelchair bound to walking paraplegic was a combined effort on the part of many caregivers. And the great lesson I’m privileged to share with you, in my new memoir, is that I’ve learned that I’m not my body and you, dear reader, aren’t yours.

There is a light alive within the darkness

Will you hold another who has been touched by the darkness within? Will you love them enough to allow them to fall apart in your arms? To unravel, to become unglued, and to feel unbearably lost as the wisdom of their process unfolds? Will you be the space in which they can finally meet the feelings and emotions that have been kept at bay for a lifetime?

To love another in this way you must touch everything that is unresolved within you – all of your own unmet sadness, abandoned shame, discarded grief, and deserted aloneness. You are willing to no longer stay safe on the sidelines. You are willing to get messy. Even gooey and drippy.

Will you set aside your need for the other to change, to be different, to be “cured,” to be transformed, and to be healed? Will you resist the temptation to talk them out of their embodied experience, to tell them everything will be okay, and to dishonor the creativity hidden inside the unwanted? Will you allow your heart to break with them, and endure the urge inside you to put it all back together again? Will you fall into the unknown with them, holding them close, and provide a home for their brokenness?

To care about others, yourself, and the world in this way you must stay radically embodied. You are no longer interested in transcending suffering, confusion, and neurosis, for you see these as thundering expressions of the path itself. Please don’t turn away. As your attention moves out into the conceptual world, return to the wild intelligence of your body, for it is there that love is working behind the scenes, giving birth to its sweet activity in this dimension.

It is in this factory of love, which is operating as the temple of your own body, where the sacred world is revealing its essential secrets of healing: there is no “other,” there has never been an “other,” and there could never be an “other.” There is only the reflection of your own being.

Love is taking the pieces of your heart and is using them to re-assemble the world in front of you, each as an invitation sent to reveal to you the preciousness of what is really happening here.

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Inside the broken-open heart

Inside the broken-open heart it is unbearably alive
The world cries out for you to mend the brokenness
Yet there is another longing to stay broken, to befriend the sadness, to hold the loneliness
There are colors in the sky that could never be seen
There is a scent in the jasmine that could never be known
There are sensations in the breeze that could never be felt… until this moment
It is only within the broken-open heart that the unseen can reveal itself

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Dr. Andrew Weil on “cooking” meditation

In many contemplative traditions, it is said that we can practice meditation during the most ordinary activities, such as taking a walk, washing the dishes, or even in the midst of a busy day of emails. Here, our friend and Sounds True author Dr. Andrew Weil shows how the simple art of cooking – when engaged in a present, mindful, and open way – can offer a gateway into the experience of meditation.

We’d love to hear from you on how cooking and other so-called “ordinary” activities offer you a portal into deeper love, awakening, and aliveness in the present moment.

An outpouring of love stories

Perhaps love is not something you need to seek any longer. That it is not something you will finally get more of one day, just as soon as you pray enough, meditate in the right way, forgive better, accept more deeply, finally ‘let it all go’, rest as the ‘witness,’ stay in the ‘now’, and become a perfect spiritual person.

Friend, you will never find more love, for love is what you are. It is what your organs, your nervous system, and the cells of your heart are crafted of. It is forming as your arms when you hold another, as your words when you speak kindness, and as your tongue as you taste the honey-nectar of the beloved as it arrives by way of your sweet lover.

Allow yourself to receive the benediction of pure presence, for it is your birthright. It is wired inside you and longing to erupt from your totally out of control heart. For when it does, an avalanche of grace is unleashed, sending love stories, wild music, and sweet poetry into the stars and supernovas, seeding the galaxies with your unique light.

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Digitization – Friend or Foe?

We have an ongoing debate in our house about how digital our world is becoming and whether our increasing digitization is a benefit or a curse. You’ve also likely seen studies about how use of mobile devices is causing us to become disengaged from one-on-one interactions, how 66 percent of people suffer from nomophobia (fear of being without a cell phone), or how “face time” is now better known as an iPhone app than a tangible experience.

As a high school English literature teacher, my husband is very much in the camp of those who are concerned about the potential detriments of digitization. It’s often hard enough to get students to put down their cell phones during one class, much less to get them to read an entire book. And, these trends don’t just start in high school—there are three and four year olds out there who could teach me a few things about iPhones and iPads! While there is no wrong or right answer, this trend has caused many to question the impact that this world of instant gratification and constant connectedness will have on the attention spans of future generations.

As a member of the publishing industry—and a company that is currently forging its way into the digital frontier by way of ebooks, apps, and downloadable everything—and a wife who always loves a good debate, I can’t help but think of all of the benefits that digitization has afforded us. I’m not saying that I disagree with the negative aspects of technology addiction, mind you, but I do believe that the digital world has afforded some profound and unparalleled opportunities that simply cannot be ignored.

For instance, many organizations, such as Now Clinic, allow people to connect with physicians and other medical professionals through the internet and outside of traditional business hours. The National Voices Project has similarly been exploring ways to provide mental health services via Skype to those who would otherwise be unable to access such resources. On a personal level, we’ve been able to remain in constant contact with family and friends all over the world—and we’ve seen their children grow between visits. We’ve partaken in talks and concerts and festivals from across the globe. We’ve accessed mindfulness practices and meditation bells directly from our iPhone apps. We’ve engaged with the teachings of spiritual teachers far and wide (try it for yourself and watch our free Refreshing Our Hearts live stream with Thich Nhat Hanh on 10/26).

Finally, as someone who is currently learning to speak Portuguese, technology has unlocked an invaluable world of tools and resources. I take lessons via Skype from a woman in Lisbon, have an iPhone app that acts as a deck of flashcards (complete with proper pronunciation!), I stream Portuguese radio throughout the day, and there are online communities like The Mixxer designed specifically for people who want to practice speaking new languages with one another via the internet—none of which would exist without the digital world.

The bottom line is that things are always evolving. In fact, change is one of the only constants in our lives, so why not embrace this new frontier with an open heart?  It comes to this: Can we be grateful for it as well as cautious of it?

So, what is your opinion? And, how does technology act as a benefit or a burden in your own life?

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