Defiant

    —
June 12, 2017

By Janine Shepherd

I have spent most of my life trying to hide the extent of my disability. By sharing my story in Defiant, at long last, it feels like I have ‘come out’ as a spinal patient and it is liberating. I now embrace the word ‘disability’ with pride as I consider how far I have come and what I have achieved since my accident.

I spent almost six months in the spinal ward after a near fatal accident in 1986 left me with life-threatening injuries, including multiple fractures to my neck and back. I still remember the day my father drove me out of the hospital gates, my wheelchair in the back of the car, my emaciated body wrapped in a full plaster body cast to protect my newly repaired back. Life as I knew it would never be the same. In many ways I was fortunate, and in other ways, not so.

Although I was initially told that it was unlikely I would walk again, or have children, or do the things I had done before in my days as an elite athlete, I was determined to defy the grim prognosis. I would eventually go on to learn to walk again, albeit with a limping gait that would lead to many other complications.

My remarkable recovery from wheelchair bound to walking paraplegic was a combined effort on the part of many caregivers. And the great lesson I’m privileged to share with you, in my new memoir, is that I’ve learned that I’m not my body and you, dear reader, aren’t yours.

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Defiant

By Janine Shepherd

I have spent most of my life trying to hide the extent of my disability. By sharing my story in Defiant, at long last, it feels like I have ‘come out’ as a spinal patient and it is liberating. I now embrace the word ‘disability’ with pride as I consider how far I have come and what I have achieved since my accident.

I spent almost six months in the spinal ward after a near fatal accident in 1986 left me with life-threatening injuries, including multiple fractures to my neck and back. I still remember the day my father drove me out of the hospital gates, my wheelchair in the back of the car, my emaciated body wrapped in a full plaster body cast to protect my newly repaired back. Life as I knew it would never be the same. In many ways I was fortunate, and in other ways, not so.

Although I was initially told that it was unlikely I would walk again, or have children, or do the things I had done before in my days as an elite athlete, I was determined to defy the grim prognosis. I would eventually go on to learn to walk again, albeit with a limping gait that would lead to many other complications.

My remarkable recovery from wheelchair bound to walking paraplegic was a combined effort on the part of many caregivers. And the great lesson I’m privileged to share with you, in my new memoir, is that I’ve learned that I’m not my body and you, dear reader, aren’t yours.

Janine Shepherd: A Broken Body Is Not A Broken Person

Janine Shepherd is an author, motivational speaker, and former Olympic-level skier whose work draws upon an incredible journey of personal healing. She details that journey—from the car accident that broke her spine through intense rehabilitation and beyond—in the Sounds True book Defiant: A Broken Body Is Not a Broken Person. In this episode of Insights at the Edge, Tami Simon and Janine talk about the active choice to be alive and the power in knowing that decision. They speak on what it means to be truly resilient, and how one can experience fear without being afraid of it. Finally, Janine explains the realization that she is more than just a body and how that has reshaped her view of death and dying. (55 minutes)

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Turning to my Filipino Roots to Tend to Womb Loss

October is a meaningful month for me as it honors two important parts of my identity. It is Filipino American History Month, a time to acknowledge and honor the presence and contributions of Filipino Americans. Although my parents immigrated to the United States from the Philippines in 1980, records show that Filipinos were present here as early as 1587, landing in present-day Morro Bay, California as part of a Spanish galleon. In an interesting moment of alignment, I am writing this to you from Morro Bay, feeling the palpable power of the land and seeing the sacred 600-foot-tall Morro Rock–known as Lisamu’ in the Chumash language and Lesa’mo’ by the Salinan people–standing proudly just outside the window of our Airstream trailer. October is also Pregnancy and Infant Loss Awareness Month, a time to increase awareness about and honor those of us who have endured such loss- what I often refer to as womb loss.

This October is particularly meaningful with my book, To Tend and To Hold: Honoring Our Bodies, Our Needs, and Our Grief Through Pregnancy and Infant Loss, officially launching on October 22. In it I share how my identities as a Filipina American and bereaved mother intertwine, and how valuable it can be for survivors of womb loss to turn to their cultural traditions for support as they grieve and as their postpartum bodies return to a non-pregnant state. How I came across this online essay and found solace in the language of my ancestors who use terms to describe miscarriage as “someone from whom something was taken away” rather than placing blame with the prefix mis- which means wrongly or badly. I did not carry my pregnancies wrongly or badly. Loss was something that my body experienced.

The following is an excerpt from To Tend and To Hold that I hold dear as it shares a traditional Filipino dish I grew up eating and that I share now as a postpartum doula to offer comfort and nourishment to those who are postpartum, both with living children and after loss. I hope it may offer you comfort as well, no matter if your experience of womb loss was recent, in the past weeks, months or even many years ago. My heart is with you and please know that you are not alone as you grieve and as you heal- at your own pace and in your own way.

~

I recently cooked this recipe for champorado, a Filipino rice porridge, for my beloved friend Katrina on a very tender anniversary, the due date of one of her children and the death date of another. Her child, Zeo Thomas, would have been born that day had he not died in the womb at five months gestation. It was within the same year of his death that her second child, Solis Vida, died in the womb in the first trimester. In truth, Katrina had been bleeding for over a week to release her second pregnancy, but as she bled through Zeo’s due date, she felt an intuitive pull to honor this same date as Solis’s death date. I thought of my friend as I made my way slowly through the grocery store. Though it was crowded and busy, I felt cocooned in my thoughts and intentions for her—how I wanted to help her feel seen and held during this difficult time—and I found myself gathering each of the ingredients in a mindful way that felt like the beginning of a bigger ritual. Knowing I was going to cook for her to honor her, her babies, her grief, and also her longings added a layer of reverence to what would otherwise be a standard grocery run. Later as I cooked the porridge in her home, I channeled my love and condolences into each step. And when I finally brought the warm bowl of champorado to her and saw her reaction, it was my turn to feel honored. Honored  to be there with her. Honored to tend to her. And with a dish we both knew from our childhoods. She dubbed it “postpartum champorado,” and so it shall be known.

Warm and soft, rice porridge is one of the best postpartum foods as it is easy to eat, warming to the body, and gentle on the digestive system. Its very nature is to offer comfort. In my opinion, champorado, a Filipino chocolate rice porridge I grew up savoring, is one of the most heartwarming dishes, with the cacao tending as much to the emotional heart as to the physical body. It can be offered any time of day for both a filling meal and a gentle reminder that there is still sweetness in life even amidst grief.

In this nourishing version, cacao powder is used in place of cocoa so that we may benefit from all that this superfood has to offer, including iron to help rebuild red blood cells, flavonoids to improve blood flow, and magnesium to ease anxiety and depression. In addition to being nutrient-rich, cacao is also known to lift the mood. If the thought of preparing food feels beyond your current capacity at this moment, consider sharing this recipe with a partner, postpartum doula, or other support person and asking them to cook it for you. Additionally, if you are currently pregnant, please consult your health-care provider before consuming cacao as it contains caffeine.

Champorado: Filipino chocolate rice porridge

  • 1 cup sweet rice (also called glutinous or sticky rice) or sushi rice
  • 5 cups water
  • 1/4 cup cacao powder
  • 1/2 cup brown sugar
  • 1 tablespoon unflavored protein powder (optional)
  • Condensed coconut milk for topping
  • Cacao nibs (optional)

Rinse the sweet rice several times until the water runs clear when drained.

Combine rice and water in a pot over medium-high heat. Bring to a boil, then reduce heat to medium and continue to cook until the rice is soft and the porridge thickens (about 20 minutes), stirring often to keep from sticking to the bottom of the pot.

Add cacao powder, brown sugar, and unflavored protein powder. Stir to combine, then remove from heat.

Drizzle condensed coconut milk (or other milk of choice) and top with cacao nibs. Serve hot.

To Tend and to Hold

Amazon | Barnes & Noble | Bookshop | Sounds True

Eileen S. Rosete

Valarie Kaur: Sage Warrior

Through the eyes of the sage, all of humanity is kin. And all of our ancestors are available to support us if we relate to them with integrity and respect. So teaches social activist and author Valarie Kaur in her new book, Sage Warrior. In this podcast, Tami Simon speaks with Valarie about how we can navigate the time of cultural transition that we find ourselves in by “reclaiming love as a force for justice, healing, and transformation.”

Give a listen to this conversation that is at once highly informative and deeply inspiring, as Tami and Valarie discuss: bringing together the heart of devotion and the fist held high in the name of liberation; taking our saints and sages off of the pedestal; a brief history of the Sikh tradition; the city of Punjab in the 15th century; the warrior-mystic; dismantling hierarchies; walking the path of love without following a leader; the legendary female sage warrior, Mai Bhago; acts of love that change everything; the power of story; sustaining one’s energy throughout long labor; releasing that which does not serve you; the Revolutionary Love Bus Tour—and how you can get involved in this work; and more.

Note: This episode originally aired on Sounds True One, where these special episodes of Insights at the Edge are available to watch live on video and with exclusive access to Q&As with our guests. Learn more at join.soundstrue.com.

Five Tips for Postpartum Bliss

Bliss out on baby, mi amor. Love your chichis. Admire your soft curves, your delicate belly, and the way you require intentional care. Everything deep comes to the surface as you pour sweat, milk, blood, and tears onto your sheets. I want your postpartum to feel blissful, so here are five tips to help you make that happen.

1. Make a postpartum plan.

You can’t plan exactly the way the birth will pan out, but you can plan the details of your postpartum support. Bodywork, meals, laundry, and childcare for your other children are some things to consider. Use this book as a guide to feel into what nonnegotiables you’ll need in place during la cuarentena.

2. Don’t DIY postpartum.

There’s a time and place for self-reliance. Postpartum ain’t the time. Postpartum traditions are community centered. Once you know that you’re pregnant, surrender to other folks holding you. Waddle that ass to circles with like-minded familias who you know would be down for mutual support. This is why we have the Indigemama community and so many other comunidades who are dedicated to saving our lives.

3. Shift your mindset.

One of the biggest internal challenges I see postpartum people go through is the mental chatter that puts a wall up, barring any chance for outside support. When we’re socialized into struggling and then rewarded for doing things on our own, it’s easy to feel guilty asking for help. You might be distrustful of other people’s capacity to fulfill your needs. How many times have you heard women say, “If you want something done right, you gotta do it yourself”? This belief sets postpartum people up for anxiety, stress, depression, and overwhelm. If you want postpartum done right, you have to feel in your body that you are worthy of being venerated; you must feel that you are deserving of being held. 

Paying homage to you is paying homage to nature itself. Give your potential supporters that opportunity to connect with creation.

4. Repeat after me: affirmations, affirmations.

It’s easy to feel ashamed to ask for what you need. It’s normal to feel guilty when you see how hard people are working for you. Give yourself a pep talk: I allow myself to be cared for. I accept this help. I trust that I can be held without lifting a finger. I surrender myself to the love and labor of others. I soften and allow myself to be carried. I want you to do this every moment that you need it. When you affirm that you’re doing the right thing over and over, then eventually it becomes second nature.

5. Support your romantic relationship.

Postpartum is stressful AF! Those of us with multiple children can tell you that the little ones tend to take precedent over romantic relationships. But after a while, that really weighs down a union. Plan relationship goals. When will you start to date again? What’s the plan for one-on-one time? Who are the people who hold you and your partner(s) up as a sacred union? What baggage can you each decide to let go of now? What support can each of you get individually from healthy older couples who are content with each other? What can you appreciate about each other during la cuarentena? What words do you need to say to each other when the going gets tough? Nurturing a healthy, loving relationship with each other when you’re parenting children is a practice of discipline.

This excerpt is from Thriving Postpartum: Embracing the Indigenous Wisdom of La Cuarentena by Pānquetzani

Pānquetzani

Pānquetzani comes from a matriarchal family of folk healers from the valley of Mexico (Tenochtitlan, Texcoco, and Tlaxcala), La Comarca Lagunera (Durango and Coahuila), and Zacatecas. As a traditional herbalist, healer, and birth keeper, Pānquetzani has touched over 3,000 wombs and bellies. Through her platform, Indigemama: Ancestral Healing, she has taught over 100 live, in-person intensives and trainings on womb wellness. She lives in California. For more, visit indigemama.com.

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